Trigeminal Neuralgia: Frequently Asked Questions

Trigeminal Neuralgia: Frequently Asked Questions

[MUSIC] Trigeminal neuralgia is probably
the most common cause of face pain, and it is actually
a clinical diagnosis. And the way you make
the diagnosis with trigeminal neuralgia is through
listening to the patient and getting their symptoms. Oftentimes, patients report
that the pain has very characteristic elements such as, a sharp stabbing pain,
or electric-like pain. And patients report that things
such as cold wind, eating, drinking, or brushing their
teeth can trigger this pain. [MUSIC] So the ultimate cause of
trigeminal neuralgia is not known. Some believe, and
many of us believe, that there’s a mechanical
cause to this. And in a lot of the patients,
it seems to be caused by, or thought to be caused by,
an artery rubbing on a nerve. And as the artery rubs on
the nerve, kinda like you taking your thumb and rubbing an
electrical cord for many years. The analogy I make is,
it’s essentially stripping away the insulation to the nerve, and
that insulation’s called myelin. And once you strip away
that insulation, you have essentially the bare ends of
the nerves touching each other. And it’s almost like a short
circuiting of the nerve. And that’s manifested as this
sharp and stabbing pain or electrical pain. But in some patients, we still
don’t really know the cause. [MUSIC] Trigeminal neuralgia is
a clinical diagnosis. And what I mean by clinical
diagnosis is that there’s no real good blood test or an MRI
that can give the clinician and the patient an aha
moment to say, this is trigeminal neuralgia. It’s really based
on the symptoms, such as the sharp stabbing
pain or the electrical pain. And looking for
things such as triggers, such as the brushing of someone’s
teeth or cold wind or talking. So because it’s
a clinical diagnosis, sometimes there
are other causes. So oftentimes, clinicians
will do other tests and get tests such as an MRI of the
brain to rule out other causes of facial pain. Things like brain tumors or
multiple sclerosis or an inflammatory condition
such as lupus or rheumatoid arthritis
can cause facial pain. So the first thing that we
do when we’re trying to assess somebody with
facial pain, and we’re concerned about trigeminal
neuralgia is to rule out other causes such as brain tumors or
inflammatory conditions. But also, I think it’s important
to understand that with a clinical diagnosis, we take
the clinical history, but sometimes the ultimate cause may
become more evident years later. [MUSIC] So the treatment options for
a patient who presents with trigeminal neuralgia usually
start with a medical therapy. Patients respond very
well to medications such as Tegretol or
Lyrica or Trileptal. All of these are seizure meds. But they work very well for patients who present with
the sharp stabbing pain. In patients who become tolerant
to these medications or for patients who cannot
tolerate the side-effects, then there are surgical
options for patients. And I group the surgical options
into two different modalities. One is more of an ablative or
destructive. It sounds like it
is destructive, but it’s more of
an ablative procedure. Those are procedures such as the
rhizotomy, where we basically take a needle and poke it
right through the cheek here. And with the use of X-rays, we
thread the needle up to the base of the skull, right where
the nerve comes out, and we burn the nerve, or treat it
with a chemical called glycerin. That is a very
effective therapy, and it works in probably 80
to 90% of the patients. But it’s not a permanent
solution, for oftentimes the nerves
do regenerate. In addition, there’s a little
bit higher rate of side-effects. Some patients can have numbness
and sometimes have some difficulty chewing because
the nerve responsible for chewing runs right along
the trigeminal nerve. And so there are some increased
risks of side-effects with a rhizotomy. Another form of therapy, kind of in this ablative
category, is radiosurgery. And radiosurgery is a technique
where we use tiny beams of radiation and focus them all
onto the trigeminal nerve. And we essentially
blast the nerve with a very high dose of radiation
in a very precise manner. And when you do that, in a good
number of patients, probably about 80 to 90% of the patients,
they can get pain relief. And again, it works very
similarly in concept to the rhizotomy, where you’re essentially injuring the nerve
to make it feel better. With the radiosurgery,
there’s, again, a little higher risk of having
things such as numbness and problems with potentially
chewing, albeit very low risks. And unlike the rhizotomy which
can be done multiple times, usually you can do
the radiation once or twice. Because at that point having
more radiation probably adds increased risk such as injury to
other structures in the brain. The last approach is something
called a microvascular decompression, and I call that
kind of, like a repair surgery. And as I eluded to earlier, many believe that the cause
of trigeminal neuralgia is the result of an artery
rubbing on the nerve. And so if you could think of it
kind of just at this most basic level, if you can lift
the artery off of a nerve, perhaps you can get
improved pain relief. And so
when you do this procedure, which is a microvascular
decompression, it’s a surgery that’s done
right here behind the ear. We can make a very small
opening in the bone. We can actually then be able
to visualize the nerve with a microscope and literally lift
the artery off of the nerve. And then we put a cushion
between the artery and the nerve, usually it’s
a pledget made of Teflon. And it’s something that’s very
safe and inert in patients. When you do that procedure,
patients can do very, very well. About 90% of the patients will
have a great response to this. And I would say somewhere
between 70 to 80% of the patients actually go on to
be pain free for 20 years and beyond. So it’s a really appealing
surgery cuz it’s really designed to restore you. And the way that
the surgery is done, after everything’s said and
done and you heal, there should be no
limitations from the surgery. [MUSIC] So how would one know
when to have surgery? That is an individual question. And it really comes down to,
one, how well a patient can
tolerate the medicine? If the medicine is
well-tolerated and one doesn’t have
side-effects and one doesn’t mind the inconvenience
of taking medicines, some people can stay on
lifelong medications. It’s when people cannot tolerate
either the side-effects of the medication, or if
the medications no longer work, then surgery is a very
reasonable option to consider. [MUSIC] It comes down to
several factors. One, I think the overall
health of the patient is very important to consider. If a patient has a significant
amount of comorbidities or if their primary care doctor or
if their cardiologist feels that a patient has a significant risk
from going under anesthesia, we would think of options
such as radiosurgery, which is the radiation. It does not require anesthesia,
and patients are awake through this. And it’s a non-invasive
procedure. If a patient, in general,
when I have a younger, healthy patient,
I think of trying to find a therapy that could give them
durable and long-term relief. And so microvascular
decompression in that situation might be a great option for
them. Because if you could have one
therapy and be done with it and be potentially cured,
I think that’s the best option. But sometimes patients have
very busy lives and undergoing an open procedure, which would
require a few weeks to recover, may not work with a person
at that point in their life. And so, for example, a rhizotomy
is an outpatient procedure. It’s a very quick procedure. And patients could be back on
their feet the next day and go back to work. So factors such as the overall
health to undergoing anesthesia, convenience, in terms of
one’s life or schedule, and the durability of
the therapy are all factors I discuss with the patient
in coming to a decision. But more importantly, it’s a decision that
we come to together. [MUSIC] So here at Hopkins,
we have a dedicated staff. We actually have, really,
a great ongoing research for patients with
trigeminal neuralgia. We’ve been able to get
several grants to be able to look at the outcomes
of our patients and even be able to look at
experimental new therapies. And because of our tremendous
patient experience, we’re able to maximize the
outcomes of our patients with trigeminal neuralgia
in terms of success. [MUSIC]

95 comments on “Trigeminal Neuralgia: Frequently Asked Questions

  1. Phil Wotring Post author

    I had TGI from 1989 to 1995 and had surgery separating the nerve and artery and my pain ended. I began to live again. Definitely recommend the surgery but do your research. You may have to educate your HCP.

  2. Sujeewa Rajapakse Post author

    Could you please let me know how to get in contact with the doctors to find out more about getting help for my friend who is suffering from a severe case of Trigeminal Neuralgia. Many thanks.

  3. BunnyBear Post author

    I was turned down by a Neurosurgeon because my TN is caused by recurring shingles in the ear. I am completely disabled. I have post herpetic and trigeminal neuralgia. I already have numbness so I am interested in radiation.

  4. Mark W Post author

    Dr. Lim described my journey with TN to a tee.  I first felt excruciating pain in my right lower jaw (it was always located under teeth #29/30) sporadically in late 2010.  I had a few dental exams but nothing showed up.  I was able to live with the occasional pain until March 2012 when intensity and frequency kicked in.  At that time I actually self-diagnosed TN through internet research and when my PCP agreed he prescribed Carbamazepine which did wonders for a long while although I still had occasional pain bouts that were pretty intolerable.Along came February 2017 when my pain went to a new level and I had a true appreciation of why TN is also called the suicide disease.  Long story short I didn't want to risk the side effects (numbness etc.) of ablative procedures so I had MVD surgery on June 1 when I was 61 yo – I felt I was young and certainly willing enough to accept the surgery risks.  Best decision I ever made – I was instantly cured and was able to avoid all risks and side effects.  I spent two nights in UCLA then two more weeks at home on meds.  Now 100%.  Thanks so much to UCLA – Go Bruins!  I'm sure Dr. Lim at JH has an equally competent team.

  5. Sammy H. Post author

    I am only 19 years old and i been with the pain for 4 years already. I have the same pain that stabbing, shocks, needles, burning sensations, sometimes i feel my eye is goinh to pop out. All because if the extreme intense pain i get. I know they say the pain starts during your 40s or 50s but mine started so young. Im already tired the pain has gotten worse over time i been in medications but for me medications dont longer work for the pain. Im just so scared and traumatize. I just you myselft into god hands.

  6. kother100 Post author

    My sister was diagnosed with TN 2 years ago and she had this pain for over 3 years but her doctor thought it was TMJ at beginning; it became clear from the nature of her pain it was TN. it has been progressively getting worse even with medication. Now the pain is unbearable for her, it is taking over her life she can’t work or do her daily routines. I think the surgery is good option for her, However, we live in Australia, Can you please recommend a neurosurgeon who's does this surgery in Australia??? It sounds like a very delicate and precise surgery that's not commonly done.

  7. Ross G Post author

    Is this a commercial ? Is it only about the money ? How does a christian nation not have a single payer health system, a queue is a good thing if everyone can join.

  8. megan pagliughi Post author

    I have been dealing with this pain since I was a teenager and never knew what it was! It has jist gotten very very VERYYYY extreme and I am at my witts end! No doctors know what's wrong with me. Chiar I malformation then I just found out I have a pineal cyst now I'm dealing with excruciating pain that I know is TN! I have been misdiagnosed with sinus infections and tooth infections etc but the pain is where there isn't even a tooth anymore! It's crazy!

  9. Angela Gross Post author

    I have been recently diagnosed with Multiple Sclerosis, YTN and Hemifacial Spasms. Could I possibly qualify for MVD with MS?

  10. edik sidorov Post author

    Hello Dear, mom of my cousin suffering already 5 years, recently ( last 2 years) the pain on the left side of the face took away even the few minutes of rest in whole day…. she did 2 surgeries and nothing helps its just getting worst … we really don't know what to do … we already spend thousands of dollars… my grandma spent all her saving on the treatments the whole family is suffering to, we live in Israel and we tried every thing here( we don't have any specific center that specializes on Trigeminal Neuralgia) , after the second and the last surgery, when doctor came out of the surgery room he looked on us and told us" that's it …. if this will not help we cant help you with anything any more…" and i'm still desperate to save her…. last time when i have visited her she told me " that's it Edward… this is my last days of my life …. " i'm spending hours on the Google to find any clue maybe there is some one that knows how to cure this maybe there is some specialist that can help , maybe you guys can some how help us ! please contact me if you think there is another possibility to save her ! thank you !

  11. Kao Vang Post author

    My grandma experience a similar pain, but I am not sure if it is Trigeminal Neuralgia. She often experience an extremely sharp pain between her nose and the gum. If anyone could tell me what it is, that would be very helpful. Thank You.

  12. MsNYCVA Post author

    Dr. Kim is my surgeon. He's excellent. He's so patient and truly listens. His demeanor is so inviting. I love speaking with him because he wants the best outcome for me. He currently treats me with rhizotomy. I have had the injection twice so far. I'm strongly considering the MVD. Now my pain is isolated in the nasal canal, gumline, lower lip and eyelid. It tears me up every time I blink. I pray for a cure. I definitely have seen worst days. I was diagnosed 20yrs ago.

  13. Mary Schatz Post author

    I've had the MRI and been diagnosed with idiopathic TN. But its not bad yet, sort of comes and goes in 2 week "waves" and the pain itself is so far more an inconvenience, mostly the tooth nerve is bothersome. I've had other TN patients tell me theirs started slow too and got bad after a few years. My Question: Is there any way to stop this from getting worse? Am I doing something to irritate the nerve? Am I doomed?

  14. Katrina Piezonka Post author

    My daughter suffers from this disease. She has it in all three areas . Whole left side of her face. It is extremely excruciating pain. Shocking , stabbing, electric pain. She is on medicine for this from her neurologist. However it seems to be more intense and more often it rises to the level of unbearable. She is also disabled with other conditions. Unclear on what I can possibly do to help her at this point. Horrifically painful situation.

  15. prita kumari Post author

    Recently for past 25 days I am having pain in right lower jaw inside my mouth. Doctor have prescribed medicines but I don't know what I have

  16. TATIANA COLLEDAN - Neuralgia do Trigêmeo Post author

    My name is Tatiana, I am 44 years old and I have the three branches ofthe nerve sick in the right side. I had 4 balloon, 4 rizotomies and 1 MVD (the bone was left open on the surgery!). The pain is excruciating over the past 10 years. The doctors have no idea how to treat a case like mine anymore… I am from Brazil….

  17. Raquel Concepcion Post author

    I'm having a slight shock feeling in my cheek to under my nose. I think it might be my maxillary nerve. It isn't excruciating pain but it can get annoying. It happens whenever I don't get enough sleep and has been affecting me for a few weeks. Does anybody know what I have ?

  18. Chris Lambert Post author

    Dr. Lim is doing an MVD for my Trigeminal Neuralgia in about two weeks. I've suffered with TN for 9 years now. I hope this will allow me some long term relief. Wish me luck!

  19. Krishna Raju Post author

    ನನ್ನ ಟ್ರೈಜಿನೋಮಿನಲ್ nuerolgia 20 ವರ್ಷಗಳಿಂದ ಇದ್ದು ಅದನ್ನು ಪೂಜ್ಯ ಶ್ರೀ ಶ್ರೀ ರವಿಶಂಕರ್ ಗುರೂಜಯವರ ಕೃಪೆ ಆಶೀರ್ವಾದ ಗಳಿಂದ Dr Chandramouli. B.A. ಎಂಬ ಪುಣ್ಯಾತ್ಮ ಅತ್ಯಂತ ಯಶಸ್ವಿಯಾಗಿ 5/4/2014 ರಂದು ಬೆಂಗಳೂರಿನ ವಿಕ್ರಮ್ ಆಸ್ಪತ್ರೆಯಲ್ಲಿ ನೆರವೇರಿಸಿದರು ಈಗ ಅದರ ತೊಂದರೆ ಯಿಂದ ಮುಕ್ತಿ ಪಡೆದಿದ್ದಿನಿ ನನ್ನ ಜೀವಮಾನ ಪೂರ್ತಿ ಅವರಿಗೆ ಕೃತಜ್ಞತೆ ಹೊಂದಿದ್ದೇನೆ ಅವರ ಸೇವೆ ಅನೇಕರಿಗೆ ಸಿಗಲಿ ಎಂದು ಆಶಿಸುತ್ತೇನೆ. ಜೈ Gurudev

  20. LadyL White Post author

    Good evening, I had the compression surgery done April 10, 2015, my doctor was Dr. A A., he was recommended to do my surgery about my new Neurologist with Kaiser Permanente Dr. D. G. Dr. A, informed Me in the presence of a family member that he had grazed one of My sensory nerve one of them that controls the functioning of some portion of My body. I really didn't think anything of it because I had just awakened from the brain surgery. That surgery left Me unable to remember people that are immediate family. To make a long story short I had to learn everything all over again and, I now walk with a walker and I am no longer able to drive. I am presently receiving in-home visits right now from a nurse, a (theripist) and soon to be a occupational therapist. This just started two weeks ago.

    In My opinion I think the surgery could be well done, however, I would be sure that there would be done by someone who truly cared about You the patient, and someone who is definitely aware of paying attention to the details. Negligence is not something that is acceptable in any portion of the body but especially during surgery on the brain that can affect your whole body. I will walk on my own again, because I am just determined.

    I would definitely do the surgery, however, I would make sure that I have a surgeon who is very attentive to his patients and not just in conversation but in what he or she does.

  21. Abdulla AlTurabi Post author

    I've had chronic pain for 6 years that started from right shoulder, to my right side neck, and into my right cheek. And the pain is basically always with me but it's just less severe when ive slept properly and just woke up. But it increases throughout the day gradually and more fast if im under any type of stress or if i talk a lot. The one that is most unbearable is my right side cheek pain. It's like aches and sores. Very hard to explain tbh. But i also want to note that i have pain in my left chest that started a little before it and functions the same way as cheek pain. Also, almost a year back i was working in a stressful work environment (call center) while i was working there that made the pain that i had on my upper right side body also spread to my arms, in bicep and forearm. And been it's with me since. And it's really unbearable at this point and it affected my life a lot. So what the fk do i have. Plz some1 help me. Im willing to give more info. And no doctor that i went knows wut i have. I spent more 5k dollars on appointments and medication

  22. Tom Thumb Post author

    I have had Trigeminal Neuralgia for 17 years.

    In my case I believe the cause of the pain is the nerve is inflammed.

    Food causes inflammation.

    I water fast for 3 or 4 days and the pain stops and it stays away for months and sometimes, years.

    No drugs, procedures, no doctors and no pain.

  23. Halima Yusuf Post author

    Hello dr. I am halima I do want to explain my health issue dr. I recently started having pains from headache it was so painful that it comes down to my eyes, causes double vision, it goes down to my nose and mouth even my teeth, and lost weight due to such problem, I did an MRI but it showed am normal but I still HV these pain esp the eyes pain and double vision, droopy eyelid on my right eye etc I don't now what to do my dr. Couldn't help but I ask people online one told me to meet my neurologist the other said prolactin hormone test, Sir pls help me what is this issue am suffering from tell me which Dr can I look for too test me thank you

  24. Grey Fox23 Post author

    Dental surgeries through a terrible dentist such as ( Root Canals ) could cause TN, regardless what these doctors say to back up one another doesn't gave them the right to ruin someone's life, people should look into dentists, read reviews and know who they are getting those surgeries from otherwise you would be in this pain blender such as myself, people should be cautious with their children as well, wishing recovery for those going through these terrible terrible pain

  25. Amelia Bedelia Post author

    i have been suffering a typical trigeminal neuralgia since being heavily radiated for L eye lacrimal non hodgkns lyphoma. 13 years of electricutions. i endured 2 years of painful needle nerve blocks, a nerve avulsion, then a wire stim implant with a terrible result, then a brain crainiotomy brain surgery to cut the inter cranial cluster with some releif some numbness but still electrocutions that require opiates thankfully reduced. i am told no more can be done. if i ever get denied my relatively successful stable pain control i will have to end my life. unmedicated this would be torture. canada has new assisted dying but there would not be time to pursue this option with all its forms and rules. i wish i could be drug free but currently that is not possible. i am also legally blind from radiation to the eyes and i lost all my teeth. horrible disease and terrible radiation side effects. my life destroyed at age 42. So few know about trigeminal pain and it can be caused by outward forces.

  26. 1776 or Bust Post author

    I was diagnosed today with TN, needless to say I'm devastated. I've been prescribed medication to see if I respond and I've been told they would look next into Gamma Knife. should I be pushing for a better surgical solution? I went to NYU this morning.

  27. Mark Twain Post author

    If in midwest I’ve been to UC , dr.tew , Cleveland clinic, dr.papay, Columbus Ohio riverside FUCK THEM, go to Ohio State I was introduced to their TBI department, dr.janis did decompression 80% better ,along with the best doc I’ve ever met he saved my life dr.Mysiw . Feel free to message me I had TN and ON since I was 19 I just turned 25 and I finally have quality of life

  28. PewPew Post author

    Is it possible for TN to just go away? Because it has only happened to me once. It was like 6 months ago and it happened while I was on a plane as it was about to land. It lasted for what felt like eternity but it was probably like 3 minutes or something. It has never happened after that though.

  29. Danielle Harkness Post author

    Coming up on three years of hell, TN is a shit show of disease. I have all three nerves going crazy about 80% of the time.

  30. Mitz Roma Post author

    I tried all those over the counter things and the only thing that worked for me was microdecompression surgery where the neurosurgeon went into my head and separated the nerve from the artery by placing a teflon pad between both. It's been 10 years and now the pain is coming back, maybe the pad dissolved. So I'm going to try the glycerol or botox injections.

  31. SAILESH S Post author

    Believe it or not I've had ATN since the age of 15. Got diagnosed only now. I'm 34 now. Nobody understood me for 20 yrs. I just kept managing with pain balms! All of which are not allowed to be used on facial skin of course being extremely burning/ cooling. Now managing with menthol/ clove essential oils. Tried all sorts of emla and blt creams but they destroyed my skin above the cheekbones causing red rashes swelling burning stinging etc. I wish the nerve can be frozen.

  32. carolyn rey Post author

    Hi guys. I've been suffering since 2014. First started in my tongue and then the right side of my face and now my gums and teeth. I use orajel for my pain so I can eat, drink and talk. It really works. It is short-lived but at least I can eat! I have times of remission but it's more present than absent. I also listen to binaural beats at night for stress relief and negative cleansing. That really helps as well. Through experience, I've noticed that stress, high citrus food and lack of water gives me attacks. I hope these little tips help you out. I wouldn't be opposed to trying the orajel on your face surface if that's where the pain is. Can't hurt. Hope you all find relief. This disease is horrible but please, don't give up hope!!

  33. JENNIFER Metz Post author

    I suffered from TN for 8 years. It came on gradually and in spurts. I mistook it for tooth pain and was very frustrated when many dentists said there was no problems with my teeth. It is a pain like no other. Like you have been stabbed in the face with an electrifying ice pick. Sometimes the pain is constant, other times it comes in episodes that can last minutes. It is like you are a walking voodoo doll. You never know when it will strike or what will trigger it. Chewing, drinking, talking, a breeze on your face, loud noises. It is physically excruciating and mentally tormenting. I was finally diagnosed correctly and treated with a course of antiseizure meds which over time I became tolerant to. The side effects caused excessive weight gain, fatigue, memory lapses and loss of focus. The flare ups became more intense and frequent. I researched my options and learned about the microvascular decompression surgery. Though it was the most invasive alternative, I was desperate for relief. I was 51 when I underwent the brain surgery. No question, it was not a pleasant surgery. But I was willing to endure the surgery if there was even a chance for lasting remission from the hell I had been living. I had previously had most of my right lung removed, so I figured if I could survive that, that it couldn't get much worse as far as pain went. It has been almost two years now and I am off all of the medication and have been pain free. My neurosurgeon is hopeful that I could have a remission period that could last a couple decades. I live in silent fear of the pain returning, but am grateful for the relief I have experienced. It is a very delicate surgery. If you have it done, seek someone out that has performed it many times. I went to Strong Memorial Hospital in Rochester, NY. If you are living with this disease, do not give up hope. It has driven many to suicide, but for me, the surgery was worth the risk.

  34. 23srod Post author

    I’ve had tn for 20 years but when I got diagnosed I opted for not taking medication and chose to kind of just ride it out. I was terrified of surgery as I was only 14 when diagnosed. I think it may be time now. Good luck to all with tn, it’s truly a short lived crippling pain. My biggest fear is that the attacks happen when I’m driving. It seems to happen to me when I’m laying down and my head/neck goes into the wrong position.

  35. RIA ATLANTIS Post author

    Is there anyone else suffering with trigeminal neuralgia,occipital neuralgia and fibromyalgia, please tell me how you function day by day.

  36. Amer GuvMeMe Post author

    I get this extreme sharp pain on the right size of my face starting from the top of my eye till my jaw around my teeth when a plane is descending , I would like to know why the pain is so sharp and intense , usually the pain just fades away after 1,2 days after the flight

  37. Ric ThaSneak Post author

    St. John’s wort
    Black cohosh
    Turmeric root
    Mix together in tea 🍵. Thank me later 💪🏾

  38. Savio Neriamparampil Post author

    For instant pain relief see if the following method works for you. Fill your mouth with water. It shouldn’t be so less that there isn’t any pressure on the cheeks and it shouldn’t be so much that the cheeks begin to hurt. Work with different pressures to find the optimum amount for you (it doesn’t work if there isn’t any pressure on the cheeks). Then hold the water in your mouth for around 45 seconds or so. When spitting it out, preferably just hold your head over the sink and let the water flow out of your mouth naturally without any force. This method should probably give you some relief for a few minutes and maybe more. If this methods works for you then share it with others who suffer from the same. Please note i am not a medical professional. I just came across this by chance. It has helped me. There could be possible negative effects of using this method continuously/ a number of times. Consult your regular doctor before trying this.

  39. Linda’s ITC Channel Post author

    I have chronic burning shooting and bubble pain on my trigeminal nerve since August of last year. Every day and every hour of my life. I’m at wits end. Now it’s getting worse where I feel shooting pain across my forehead stemming from my trigeminal nerve. I am at wits ends. I feel hopeless as my doctors see me as a annoying patient and I doubt I’ll get any help. I’ve failed to respond to all medication both in the ER and given my regular physicians

  40. Lisa x Post author

    Okay folks, i found the best bandaid for the misery; sit down and smoke a joint. If you have responsibilities, get someone to handle it. I have tried CBD but you need the plant in all it’s form. Conditions covered are, muscle relaxant, anti anxiety, pain relief, anti nausea, insomnia etc. I wish you all peace within your souls❤️

  41. Linda’s ITC Channel Post author

    Do your neurosurgeons offer consult via telephone or video chat? I am looking for a neurosurgeon who can look at my MRI/MRA imaging. My doctor won’t give a referral so I’m hoping I can talk to one without a referral.

  42. Grey Fox23 Post author

    I’m suicidal after suffering with TN
    for almost 3 years after a root canal surgery

  43. Good Luck Post author

    Dear doctor, my mum did the microvascular surgery for trigeminal neuralgia two months back. She had an anesthetic death. The cause of death was brain stem iskidia.. Why was it happened..? 😢

  44. Vvea Dreito Post author

    In accordance with all my symptoms I was clinically diagnosed by a holistic physician as having TMJ and he had recommended this TMJ treatment “FοΚemΚem Ta” (Google it) to me. After following the advice for 11 days , it had changed my life. I got quick remedy after adhering to the unique set of physical exercises. The face and jaw pain had totally gone..

  45. Mrs. Toy Post author

    I have trigeminal neuralgia on my left side but now I'm starting to have shock from time to time on my right side is this normal? I have had the microvascular surgery done on my left side and I still have pain but it's not nearly as bad as it was before. I still take my meds which is Oxcarbazepine and Gabapentin. I'm hoping that I don't have to have surgery on the right side as well. I live in Texas and I don't have insurance in place right now.😞

  46. Dukool Singh Post author

    My father is suffering from this. By chance we have found that keeping ice cubes in the mouth on the side of pain gives him relief and pain is gone for several hours

  47. Cookie E Post author

    I had a deep cleaning done by the dentist .Now I had this pain for the last 5 years off and on.

  48. Katherine Davis Post author

    I discovered TMJ treatment “FοΚemΚem Ta” (Google it) and proceeded to make use of it in the few days in the future. The result was remarkable since then I was able to sleep peacefully, the inflammation in my face has reduced to unnoticeable levels and also the discomfort was vanished. I felt relieved. My life has not been this filled with excitement..

  49. Mrs Baggins Post author

    I've just being told I have this. Was so bad I was given morphine. Now I on medication which is ok. Makes me numb but I'm happy. I wish this pain on noone

  50. Weazla Post author

    I've had TN for 2 years, genuinely never imagined that pain could ever be that bad. Attacks for me last hours, sometimes constant pain for days inbetween attacks, only helped by prolonged use of medication and sedatives for faster relief. I would recommend that anyone suffering with it join the TN association for your country, they send you lots of information on the condition, helpful guides to coping and detailed descriptions of surgeries and their success rates

  51. Ricky Mack Post author

    Tegretol is not helping me
    The pain is lasting for days now
    I dont think I'll be around much longer. I lost my job and insurance, nothing takes the pain away anymore. Love yall.

  52. James Swan Post author

    As a classroom teacher I was devastated with pain and migraine headache just before inservice week. I went to a doctor. He told me I had trigeminal neuralgia and put me on codeine-based painkiller. I had less pain, but couldn't function. My mom had to drive me to a second doctor. He told me I had trigeminal neuralgia and told me I had to continue the codeine for the rest of my life. My mom drove me to inservice week and the first day of school. I couldn't function as a teacher under the codeine and the ghost of the pain. When my mom picked me up from school, she told me she had a chiropractor appointment if I didn't mind waiting. The chiropractor asked to see me. I only told him I had a migraine. He examined me and said my trigeminal area had been affected by something. One pop and, even in my codeine cloud, I could tell the pain was gone. Completely gone. A few more appointments and I never had that pain again. (FYI: this particular chiropractor was old-school, more like a DO doctor. He was amazing.)

  53. Mrs. Terso Post author

    Thank you that I found this video. I was reviewing for my NCLEX and trigeminal neuralgia keeps coming out in the questions. This video helped me remember.

  54. yourcrapp Post author

    i have had this my entire life, but it always in my back head? feels like im getting stabbed. and it spreads all over the head. can this be the same?

  55. Sarah Wind Post author

    Hi. I have a question. Because of my low sodium levels my neurologist cut my dose of Carbamazepine which ended up a week later with my getting severe shocks. I upped my dose but as of two weeks later I'm still having to blend my food and am afraid it won't ever go away. My question is this. Can low sodium be treated with salt pills? I never want my dose reduced again.

  56. Carly Wilson Post author

    Im sick of it I have pain in the nerve in my head day and bloody night no relive any one got suggestion please I cot stand it any more.. The tablets are not working 10mg Antatiptaline

  57. jacquelineandron Post author

    To read reviews of Dr Michael Lim (in the video above) click here:,1,,,


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